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11/10/15 11:26 AM
Rob x 2 wrote:
Another day gone by and still the people who run Tinnitus Talk haven't posted a big red warning sign in a thread about Keppra, a dangerous drug used to treat epilepsy that is being recommended as a treatment for hyperacusis on their board. rob x 2
Another day gone by and still the people who run Tinnitus Talk haven't posted a big red warning sign in a thread about Keppra, a dangerous drug used to treat epilepsy that is being recommended as a treatment for hyperacusis on their board.
rob x 2
11/10/15 1:40 PM
11/10/15 1:49 PM
stringplayer wrote:Cute cartoon, spengler. Really. I love it!Can't speak for anybody else here, but I'm not out to fix the world. I'd just like to make one tiny part of it a little bit better. So if one less person experiments with Keppra or Trobalt because of what is posted on this board, that's a victory for the entire tinnitus community as far as I'm concerned.sp
11/10/15 2:36 PM
spengler wrote:Huh, I'm curious why you feel that way -- I think people should feel free to experiment with whatever drugs they want, as long as they're rational about it, and have all their information in order. There's a risk/reward calculus in everything; these drugs can be dangerous, but the risks of seriously harming yourself in a long term way based on cautious, short term, experimental use seem pretty negligible to me compared to a lot of other things I do on a daily basis like crossing the street, riding a motorcycle, etc. I totally get that that is just my own opinion, but if you have a minute to expand on why you disagree, I'd find it enlightening!
11/10/15 3:47 PM
11/10/15 7:31 PM
Glad to see another poster challenge Danny's views on Keppra.
On July 10, 2008, an advisory panel was convened by the Food and Drug Administration (FDA) to review data that the FDA had previously collected from drug studies showing an association between many of the antiepileptic drugs (AEDs) and suicidal ideation and behavior, which together are called suicidality. According to the FDA’s Alert, among the patients with epilepsy in these drug studies, 1 out of 1000 people taking the placebo (inactive substance) showed suicidality compared to approximately 3.5 out of 1000 people who took an AED. Don't you think those deserve mentioning? Suicide risk increasing from 1 out of 1000 (placebo) to 3.5 out of 1000 (keppra). I consider that significant. And common side effects include anxiety, loss of strength/energy, dizziness, nervousness, depression, other mood changes. What about that!?? Do you really think tinnitus sufferers need those common side effects???
It would be a different matter (side effects likely being more acceptable) if this drug had been evaluated in any way for hyperacusis but it hasn't.
11/11/15 7:52 PM
Mem'ries light the corners of my mindMisty water-colored mem'riesOf the way we were
Scattered pictures of the smiles we left behindSmiles we gave to one anotherFor the way we were
Can it be that it was all so simple thenOr has time rewritten every lineIf we had the chance to do it all again,Tell me, would we? Could we?
11/13/15 9:22 AM
04/08/16 8:46 AM
04/08/16 9:09 AM
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