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KSUmark |
Told my friend about T...his thoughts |
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Posts: 97 (07/01/09 10:31 PM) |
I was talking with one of my buddies about this bullchit disease we have called T. He asked me "dont they have a drug for that or something?".....I
completely agreed, WTF is going on, this is not a hard subject to understand, or at least it should not be. I am so %%%!%*% %%@$*@ about this, if that area of
my hearing has died; why not get a drug that supresses that level of hearing to my brain. $$#% this !%%@. I don't understand how something that can't
kill me is not cured yet. This should be the absolute simplest thing to cure or at least supress.
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darkenspirit |
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Posts: 178 (07/01/09 10:38 PM) |
Swearing and yelling about it for 5 minutes always seems to help me with my T, get rid of some of the frustrations.
Not recommended though as you will end up in anger management like I
did. Still the little bugger like to have a rant...You would just dam
(*(*&(*^&*%^%$#$ well think so!
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TammyAScuirus |
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Posts: 868 (07/02/09 2:53 PM) |
Unfortunately, there aren't drugs for everything. T is a very complicated phenomena and research in the area has been slow. Now that so many vets are
coming back from the war zone with it, and so many are disabled by it, I think research will speed up.
By the way, warn those buddies about exposure to loud noise, loud music, etc. and to wear ear protection. Just going to the movies anymore is enough to give you a case of t (many people have gotten it from that). The volume is loud enough that you can hear it in your chest. I don't know how people can sit there without earplugs. |
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Oz Greg |
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Posts: 14545 (07/02/09 6:55 PM) Under the Southern Cross. |
Mark
I believe that tinnitus has not been taken seriously for many years. Even today the reality is that there is very little $$$$ spent on research when compared to other afflictions. I think that tinnitus has been considered more of an annoyance than anything else. In many cases tinnitus is completely avoidable. It is also very complex and as far as I know the only drugs that seem to reduce the level of tinnitus are drugs that suppress the brains activity. The side effect of using these drugs for a long period of time can possibly be cause for concern. Anger and frustration also only cause to make you feel worse. It is much better to throw yourself into other aspects of your life instead of focusing on your tinnitus. In the end this is what will help you more than anything else. greg |
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freddie connor |
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Posts: 12226 (07/03/09 11:55 AM) |
thats a good post Greg has given you Mark.
Freddie. |
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RenoAlaska |
Treatment | ||
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Posts: 194 (07/06/09 7:09 PM) |
I think there are several reasons good treatment is not available.
1. Until the last couple of years doctors thought the problem was in your ears. They are finally realizing it is in the brain (IMO) but doctors are STILL arguing this one. 2. Very little money spent on research. Since they thought it was in your ears what little money spent on research was combined with money going for hearing research for the deaf. 3. FDA 'protecting' you from drugs. HAH 4. It is not considered a disease. 5. So many 'cures' out there doctors think it is a minor thing (unless they have it). 6. It can't kill you! Anyone who suicides because of 't' the COD will be written up as 'depression'. 7. The government won't recognize 't' (because they have caused most of it). 8. The health insurance companies don't have to pay for anything related to it. 9. The wrong people are doing the research. They should be looking at neurology not your ears. I know a lot of people with real bad hearing that don't have 't' & some with good hearing that do have it. Splain that to me Lucy! 10. IMO the BIGGEST PROBLEM, a lot of people have very faint 't' that they can only hear in a quiet room & they think their 't' is like your 't' therefore they can't understand why YOU are making such a BIG DEAL out of it. I don't remember the exact name or number of people in a study during the 1950's but they would put a person in a soundproof room like you would for a hearing test & ask them to write down anything they heard. These test subjects did not have 't'. After an hour something like 85% wrote that they heard humming, buzzing, chirping & other sounds. This is why I agree with my nephew who has had 't' his whole life. He simply accepts it as the sound of his brain working. Our problem is that we lived many years without this sound so change is hard. I have been trying for 8 years & still working at it. All anybody knows for sure is that we don't really know much about it. What is the cause; stress, anxiety, noise, drugs, trauma, fight-flight & on & on the list goes. It is really tough to cure something when you don't even know the cause of it. Reno |
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Rob x 2 |
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Posts: 1607 (07/06/09 7:22 PM) |
Reno writes --
I think there are several reasons good treatment is not available ... Until the last couple of years doctors thought the problem was in your ears. They are finally realizing it is in the brain (IMO) but doctors are STILL arguing this one ... The wrong people are doing the research ... a lot of people have very faint 't' that they can only hear in a quiet room & they think their 't' is like your 't' therefore they can't understand why YOU are making such a BIG DEAL out of it ... Our problem is that we lived many years without this sound so change is hard ... All anybody knows for sure is that we don't really know much about it. Good treatment is available for tinnitus. It's not the case that in the last couple years doctors thought the problem was in the ears. Let the doctors argue. There are things that can be done now. Forget about research. It is out of your hands. Concentrate on what is in your hands. Tinnitus is not a disease. The government hasn't caused tinnitus. The right people are doing the research. Don't think of tinnitus as a competitive sport. Think of it as a personal challenge, educate yourself about it, learn what you can do about it today, and get moving. The notion that all anyone knows for sure is we know little about it is not true. ************ Greg writes -- I believe that tinnitus has not been taken seriously for many years...I think that tinnitus has been considered more of an annoyance than anything else...as far as I know the only drugs that seem to reduce the level of tinnitus are drugs that suppress the brains activity. The side effect of using these drugs for a long period of time can possibly be cause for concern. Anger and frustration also only cause to make you feel worse. Tinnitus has been taken seriously for years. I don't think it's true that it's been considered more of an annoyance than anything else. Xanax can be helpful for some people when administered in a particular way, and is no cause for concern. Anger and frustration are very important emotions to feel for anything that bothers us, when it leads us somewhere. If it doesn't, then they are of little use to us and probably not helpful at all. If I hadn't been upset and frustrated about tinnitus, I wouldn't have moved forward, educated myself on it, learned what I needed to learn, thought about things that were helpful to think about, and habituated it. Anger and frustration are beginning points, not ending points. rob x 2
Last Edited By: Rob x 2
07/06/09 7:34 PM.
Edited 1 times.
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karlapa |
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Posts: 1 (08/27/09 3:21 PM) |
I have had tinnitus since July 8th 2009. I am very lucky in that I only hear my tinnitus when i lay my head down, and even then, it is very faint. I recently
moved back to my college town with a new energy and positive outlook, thinking it will go completely away. I don't know if it will or not, I can only pray.
Now my only problem is I'm scared to do all the things I enjoy doing with my friends. IE- tonight all my friends are going to bars and clubs and parties. I
don't drink, so the "no alcohol" recommendation is not a problem for me, however, avoiding loud places is. I have earplugs from Walgreens and I
keep reading that it is not enough to protect me at loud places. I am at a loss and so upset that my life is being hindered by this horrendous sympton that has
more things that can make it worse, rather than better. My question :CAN I GO TO LOUD PLACES IF I HAVE EARPLUGS?????
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jcoast142 |
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Posts: 2200 (08/27/09 3:31 PM) |
Karlapa,Hiya and welcome to the board....sure you can bars and clubs..never stop yourself with having fun..your just giving in to the tinnitus.....as far as
going to loud bars or clubs..look for the speakers and STAY AWAY FROM THEM..keep your distance from all noisy areas to be safe...use your earplugs and
don't worry...Nick..
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reph |
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Posts: 18550 (08/28/09 7:59 AM) Assistant Workhorse |
if that area of my hearing has died; why not get a drug that supresses that level of hearing to my brain.
KSU, brains are flexible. They recover from some kinds of injuries by growing new connections between neurons so that a different part of the brain now performs the lost function. And there isn't a specific drug for everything. |
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lupercal |
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Posts: 8352 (08/29/09 11:37 AM) |
I read this thread, thinking that I may be able to say something useful or sensible, and all I can think of is why I stopped posting to support in the first
place.
"I am not so well that I can tell you anything at all" - Kevin Coyne Loop |
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CaliMatt |
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Posts: 185 (08/30/09 6:34 AM) |
KSUmark, I agree with you. In this day and age of space shuttles and space stations and a myriad of magic drugs advertised on tv, it's kind of pathetic. If
foot powder and muscle rub cause spikes and I can increase t when I clench my jaw, why can't scientists study those actions and make something that does
the opposite? The excuses just sound so passive to me.
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